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Data privacy statement

An operation to replace a patient’s diseased lungs with lungs from a donor
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The worsening of a disease/condition over time

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A formal documentation when someone else is given the responsibility to manage your affairs and make certain decisions on your behalf

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Refers to the lungs

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A group of tests used to check how well the lungs take in and release air and how well they supply oxygen to the rest of the body14

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A type of high blood pressure that affects the blood vessels to the lungs and the right side of the heart15

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Therapy that provides relief from symptoms to help patients live more comfortably with their disease13

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Administration of oxygen as a medical intervention11

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A small plastic tube or prongs that fit in the nostrils to deliver supplementary oxygen11

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Listening to and playing music as a therapy which aims to ease the symptoms of those living with IPF

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A sleep disorder characterised by breathing that repeatedly stops and starts during sleep12

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A specialist who helps someone recover or live with their symptoms more easily

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A machine that removes other gases from the air to provide oxygen for oxygen therapy11

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An education and exercise program designed to improve the quality of life for people with lung conditions16

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A physician specialised in lung problems (also known as a respirologist)

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A product that gives protection against a specific infection

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A test used to monitor oxygen levels in a patient’s blood, usually with a non-invasive sensor11

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A breathing technique to help control breathlessness and reduce anxiety17

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A disease that affects only a small percentage of the population

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Something that is associated with an increased risk of disease or infection

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A technique that helps to reduce stress and anxiety by helping to understand and manage your emotions

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Therapies used alongside conventional treatments that help treat symptoms and may improve overall physical and mental wellbeing

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A medical study that investigates how safe and effective a new therapy or technique is for treating a certain disease

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A disease or condition that occurs at the same time as another disease or condition

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A device to deliver compressed air to improve sleep in people with obstructive sleep apnoea6

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A disease where a waxy substance (plaque) builds up inside the coronary arteries, which supply oxygen-rich blood to the heart muscle7

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A type of chronic disease that typically worsens over time and is characterized by long-term breathing problems and poor airflow. Chronic bronchitis and emphysema are older terms used for COPD5

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Refers to the heart, and blood vessels

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A type of medication that aims to slow the scarring and stiffening of lungs to slow disease progression2

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Tiny air sacs in the lungs where the exchange of oxygen and carbon dioxide to and from the blood takes place

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A test that shows how well the lungs are working by measuring how much oxygen and carbon dioxide is in the blood. This test requires that a small volume of blood be drawn from the patient3

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Techniques that involve breathing in a certain way to control breathlessness and strengthen your lungs

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A procedure in which a bronchoscope (a medical instrument like a tube) is passed through the mouth or nose into the lung and fluid is squirted into a small part of the lung and then collected for examination4

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A lung condition where the air sacs within the lungs (alveoli) become damaged5

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Extreme weariness resulting from exertion or illness

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Of unknown cause

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Rapid and uncontrolled breathing

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A disease where there is progressive scarring or thickening of the lungs without a known cause4

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The surgical removal of cells or tissue samples from the lung for examination by a pathologist10

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The lung tissue becomes thickened and stiff

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A test that uses a type of X-ray that produces multiple, detailed images of areas inside the body4

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A burning sensation in the chest, which can spread to the throat, along with a sour taste in the mouth

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Where inflamed tissue is replaced with scar tissue, making it thicken and become stiffer4

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A symptom where the ends of the fingers become wider and rounder8

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A digestive disease where stomach acid moves up out of the stomach and irritates the lining of the food pipe (oesophagus)9

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A physician specializing in the management of diseases of the digestive system

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An event characterized by sudden, severe worsening of symptoms or an increase in disease severity1

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This Privacy Notice describes how Boehringer Ingelheim International GmbH (hereafter “Boehringer Ingelheim”, “we”, “our”, “us”) uses, stores and discloses (together “process”) the personal data we collect about you through this website. In any event, we will only process your personal data in accordance with applicable data protection and privacy laws (i.e. the General Data Protection Regulation - GDPR).

1. Use of Data and Legal Basis

1.1 Contact form or other requests

We process your data in order to provide you with the agreed or requested services on this website:

  • if you register and log in; 
  • if you take part in training courses or events;
  • if you send us inquiries about products or possible adverse event.

The legal basis is Article 6 (1) b) GDPR. If you send information about possible adverse events the legal basis is Article 6 (1) c) GDPR (see section 3 for specific information about adverse events).

1.2 Log data

When using the website, certain data, including data sent by the browser (e.g. IP address, kind of Cookies, previous website, time and date, displayed contents) is temporarily stored. We use this data to enable you to use our website and, if necessary, to review and assert our and third-party rights in the event of damage or violations of legal regulations, our terms of use and the rights of third-parties. The legal basis is Article 6 (1) b) GDPR. The log files will be stored for as long as necessary for the respective purpose, in principle no longer than 14 days.

1.3 Cookies and similar Technologies

We use Cookies (small text files placed on your browser) and similar Technologies such as pixel tags, web beacons and clear GIFs (added to the web site), all together hereinafter referred to as “Cookies”. In the following section we will differentiate between different categories of Cookies. 

1.3.1 Essential Cookies

Essential Cookies are necessary for the website to function properly. Such Cookies make a website usable by providing basic functions such as page navigation and access to secure areas of the website or language settings. Due to their importance for the website's functioning, you cannot opt-out from this kind of Cookies. We base the related processing of personal data on Art. 6 (1) b GDPR, the contractual provision of our services. 

Essential Cookies we use to provide this website include Cookies, which

  • detect whether a user uses Java Script, 
  • allow a visitor to receive site content from one out of multiple servers as the user browses the site,
  • determine whether a user has accepted which category in the Cookie banner,
  • maintain the status of the user for all page requests.

Session cookies: Session cookies allow you to proceed through many pages of a site quickly and easily without having to authenticate or reprocess each new area you visit. Session cookies are combination of one or more temporary cookie files, which are erased when you close your browser. When you restart your browser and go back to the site that created the cookie, the website will not recognize you. You will have to log back in (if login is required) or select your preferences/themes again if the site uses these features.  

Target Group : This is a special cookie to define the visibility of specific content to specific groups of users (i.e. HCPs, patients or journalists) when they want to see a different ‘version’ of the website. This specifies which audience should be able to see which content in the website. For instance, if a content contains specific scientific information, which should not be visible to the public, tagging it to be viewed by a healthcare professional audience will mean this content will only be visible to those who have identified themselves as healthcare professional.

The lifetime of essential Cookies we use extends from the respective session up to one year. 

1.3.2 Cookies for Website Optimization

Based on your consent (Art. 6 (1) a GDPR) we use Cookies to make our websites work more efficiently, as well as to recognize your device on subsequent visits to get information and statistics on your usage. You may withdraw your consent at any time without detriment and with future effect. To do so, please amend your settings here. 

We use the following services of third-party providers: 

Adobe Analytics (Omniture) 

If and as long as you consent, we use Cookies from Adobe Analytics, a web analytics service provided by Adobe Systems Software Ireland Limited (“Adobe”). Adobe Analytics uses Cookies on behalf of Boehringer Ingelheim to analyse all traffic and usage patterns. The Cookies' lifetime extends from the respective session up to three years. The IP address collected by the Cookies is made anonymous before it is geolocated. In addition, it is replaced by a generic IP address. Adobe will not associate your IP address with other information held by Adobe. You can prevent Adobe from collecting and using information (Cookies and IP address) by using your options at http://www.adobe.com/privacy/opt-out.html (link is external) or changing your settings here. 

The analyses help us to improve our services.

The Cookies related to this service allow us for example to 

  • Create a unique ID for users and enabling us to track visitors across our different domains,
  • Determine, if Cookies are enabled,
  • Captures statistics about the user's visits to the website,
  • Identify the time (in days) between two visits by the same visitor,
  • Learn about the number of visits by a single user.


1.3.3 Marketing Cookies

We use Marketing Cookies which allow us to follow users to other websites to show ads that are relevant and engaging to the individual user. We base this processing on your consent (Art. 6 (1) a GDPR), which you may withdraw at any time with future effect and without detriment amending your settings under this link.

We use the following services of third-party providers:

Facebook & Instagram (Facebook Pixel):

We use the Facebook pixel in the basic version to display personalized ads by us and third parties for you on the Facebook and Instagram platforms. Facebook and Instagram are operated by Facebook Ireland Ltd, 4 Grand Canal Square, Grand Canal Harbour, Dublin 2 Ireland ("Facebook").

For this purpose, we provide Facebook with information about your user activity on our website and certain other personal data (such as your user-ID) via a pixel. This data includes but is not limited to so called http headers (e.g. your IP address and information about your browser) and click data (i.e. the buttons clicked on our website as well as their descriptions and the web pages visited). This allows users of our website, when visiting the social network Facebook or Instagram or other websites that also use this function to display interest-based ads ("Facebook Ads" / "Instagram Ads") and us to make our website even more interesting for you.

Due to the marketing tools used, your browser automatically builds a direct connection with the Facebook server. We have no influence on the extent and further use of the data collected by Facebook using the pixel. Through the integration of Facebook Custom Audiences, Facebook receives the information that you have visited and viewed one of our online offers or learns that you have clicked an ad shown by us. If you are registered with one of Facebook's services, Facebook can assign the visit to your respective private account. Even if you are not registered by Facebook, or have not logged in, there is the possibility that the provider can discover and store your IP address and further identifiers. The Facebook pixel enables us to measure, evaluate and optimize the effectiveness of Facebook ads for statistical and market research purposes. We only receive anonymous reports from Facebook.

For logged-in users deactivation of the "Facebook Custom Audiences" function is also possible at www.facebook.com/settings/ (link is external). For more information about Facebook's collection and use of this data and your rights and choices about protecting your privacy, please refer to Facebook's Privacy Policy (https://www.facebook.com/privacy/explanation (link is external)). You can withdraw your consent to the use of the Facebook pixel at any time with effect for the future by following this link: https://www.facebook.com/login.php?next=https://www.facebook.com/ads/preferences/?entry_product=ad_settings_screen (link is external). To do this you must be logged in on Facebook or Instagram. For more information about Facebook’s data processing, please visit www.facebook.com/about/privacy (link is external).

Twitter (Conversion Tag):

We have also included the remarketing function of the Twitter service on our website. It is provided by Twitter Inc., 1355 Market Street, Suite 900, San Francisco, CA 94103, USA. With the Twitter remarketing function we can offer you advertising based on your interests on the Twitter platform. For this purpose, Twitter uses so-called "tags". This tag is used to record visits on our website as well as usage data (e.g. all interactions relating to the advertising displayed such as clicking on links, retweets or likes) in a pseudonymous, non-personal way. If you subsequently visit Twitter, integrated ads are displayed based on your interests. Twitter will then receive information from your browser that our website has been accessed by your device. If you are registered with a Twitter service, Twitter can assign the visit to your account. Even if you are not registered on Twitter or have not logged in, it is possible that the provider may learn and store your IP address and other identifiers. The information generated by the tags about your use of our services is transferred to a Twitter server in the USA and stored there. 

For more information on how to disable this feature on Twitter, see https://help.twitter.com/de/safety-and-security/privacy-controls-for-tailored-ads. For more information about Twitter’s data processing, please visit https://twitter.com/de/privacy. 

LinkedIn (Insight-Tag):

We also use conversion tracking on our website with LinkedIn Insights Tag, a tool from LinkedIn Ireland, Wilton Plaza, Wilton Place, Dublin 2, Ireland. For this purpose, the LinkedIn Insight tag is integrated on our website and a cookie is set on your device by LinkedIn. LinkedIn is informed that you have visited our website and your IP address is collected. Timestamps and events such as page views are also stored. This enables us to statistically evaluate the use of our website in order to constantly optimize it. We learn, for example, which LinkedIn ad or interaction on LinkedIn brought you to our website. This allows us to better control how our ads are displayed.

For more information on Conversion Tracking, see https://www.linkedin.com/help/linkedin/answer/67595/linkedin-conversion-trackingubersicht (link is external). Please be aware that LinkedIn's data can be stored and processed so that a connection to the respective user profile is possible and LinkedIn can use the data for its own advertising purposes. For more information, please see LinkedIn's privacy policy at https://www.linkedin.com/legal/privacy-policy (link is external). You can prevent LinkedIn from analyzing your usage behavior and from displaying interest-based recommendations at https://www.linkedin.com/psettings/guest-controls/retargeting-opt-out. 

Shariff solution for social media platforms:

We have included buttons from various social media platforms (Facebook, Twitter, YouTube, LinkedIn, Instagram and Pinterest) on our website. When you click on one of the buttons you will be forwarded to our company page on the respective platform. To protect your privacy, we have integrated the so-called Shariff solution: Only if you click on the button of one of the social media provider (e.g. Facebook) on our website your browser establishes a direct connection to the servers of the respective provider, which may be located in the USA. If you are logged into your user account with the respective provider, your profile data may be supplemented by information gained about your use of our content. The respective provider is responsible for the processing of your personal data. Further information on the processing of personal data can be found on the website of the respective provider.

1.3.4 Adobe DTM (website statistics)

We use the services of Adobe Systems Software Ireland Limited ("Adobe") to compile general statistics on the use of our website, to understand user behaviour in general and to improve our website if necessary (legal basis is Art. 6 (1) f) DSGVO). No data will be collected from your end device and no data will be stored with which you will be recognised on subsequent visits. 

1.4 Further purposes for which we process your personal data

We process your personal data to:

  • live existing and new business relationships and we will retain the personal data for the time of this business relationship. During the business relationship, we may use contact details and information regarding professional qualification (publication etc.). Some of the information is being collected via publicly available sources and internet sites. The legal basis for the processing of this data is Art. 6 (1) b) and f) of the GDPR.
  • meet our legitimate interests, including to:
    (i) complete a corporate transaction (e.g., corporate restructuring, sale or assignment of assets, merger); and
    (ii) protect our rights or property, enforce our terms of use and legal notices, and for the establishment, exercise and defence of legal claims.
  • meet our legal obligations, any court order or other binding decision;
  • with your consent for other purposes, such as, the subscription to a newsletter; in this case you have the possibility to withdraw your consent at any time.


2. Data Transfer

We may share personal information with third-parties.

2.1 Reporting obligations to regulatory authorities and enforcement of rights 

We may share personal data in pharmacovigilance cases as specified in Section 3. 

In order to protect our rights or the rights of third-parties, we may also disclose data to rights holders, consultants and authorities in accordance with legal provisions.

2.2 Service provider 

We engage service providers to process your personal data for the purposes described in this data protection information. These service providers process the data only on our behalf, in accordance with our instructions and under our control in accordance with this data privacy declaration.

One of these service providers is Adobe Systems Software Ireland Limited, 4-6 River-walk, Citywest Business Campus, Dublin 24, Ireland, providing data and web analytics services. 

2.3 Boehringer Ingelheim companies

As part of a global group of companies, we involve other Boehringer Ingelheim companies that support us in data processing. These group companies process the data exclusively for the purposes stated in this data protection declaration.

2.4 Data transfer to recipients outside the EU

Some of these service providers and Boehringer companies process personal data outside the EU. In these cases, we ensure an adequate level of data protection to comply with European law (usually through EU standard contractual clauses published by the European Commission).

3. Specific Privacy Notice for Pharmacovigilance

If you report adverse events or other pharmacovigilance relevant information to a Boehringer Ingelheim product we will use and share this data solely for pharmacovigilance purposes. (Pharmacovigilance is the detection, assessment, understanding and prevention of adverse effects or any other medicine-related problem.) 

All reports will be shared with Boehringer Ingelheim International GmbH who is operating the global pharmacovigilance database.

Boehringer Ingelheim is obliged to report pharmacovigilance relevant information to health authorities worldwide (including to countries that may have another level of data protection compared to the EU). Legal basis: Art. 6 (1) c), and for transfers outside EU Art. 6 (1) f) and Art. 49 (1) e) GDPR.

The reports will contain details about the incident but only limited personal data:

  • For Patients, the report will only contain, age, gender and initials as provided, but never the patient's name. 
  • For the reporting individuals, the report will include the name, profession (e.g. physician, pharmacist), initials or address, e-mail and phone number as provided. The contact information is required to be able to follow-up with the reporter to gain high quality and complete information on adverse events. If the reporter does not wish to provide his contact details to Boehringer Ingelheim or authorities, “Privacy” is entered in reporter's names field.

Where your data is shared with other Boehringer Ingelheim companies, business partners or service providers outside of the EU, we will provide an adequate protection of personal data.

As reports about adverse events are important for public health reasons, reports are kept for minimum of 10 years after withdrawal of the product in the last country where the product is marketed.  

4. Deletion

Boehringer Ingelheim processes your personal data for as long as necessary for the purpose of the processing, which mainly is the provision of our services requested by you. This means for example that we send you newsletters for as long as you did not withdraw your subscription or that we store your user account data (login, profession, name etc.) for as long as you maintain a user account with us. 

We will retain personal information for as long as necessary for the particular business purpose or purposes for which it was collected. If you revoke your consent, delete user accounts or object to data processing, we will delete the data collected in a timely manner. 

In some cases we are obliged to keep data to comply with statutory retention periods (e.g. in the context of pharmacovigilance). In such a case, we will ensure that your data will only be used to comply with the retention obligations and not for other purposes.

5. Your Rights

Subject to limitations in applicable law, you have a right of access, rectification, restriction, erasure, and portability of your personal data, as well as the right not to be subject to automated individual decision-making.

You also have the right to withdraw your consent at any time.

Right to object:

To the extent we base the processing on our legitimate interests, you may opt-out from such processing at any time. In this case, we will not process such personal data any longer unless our interests prevail. You can object to the use of data for direct marketing purposes at any time. You may also object to the processing of your personal data for the transfer to authorities outside the EU described above in Section 3 for pharmacovigilance cases unless the interests of Boehringer Ingelheim prevail.

Please send your request or any question you have in relation to our processing of your personal data to:

Boehringer Ingelheim International GmbH

– Data Protection Officer –
Binger Strasse 173
D-55216 Ingelheim am Rhein
Germany
E-mail: datenschutz@boehringer-ingelheim.com

If you still have concerns, you may have a right to lodge a complaint to the supervisory authority for privacy in your country or responsible for BI:

Der Landesbeauftragte für den Datenschutz und die Informationsfreiheit Rheinland-Pfalz, Hintere Bleiche 34, 55116 Mainz, poststelle@datenschutz.rlp.de