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Life with Pulmonary Fibrosis
  • Understanding pulmonary fibrosis
    • What is pulmonary fibrosis?
    • Conditions with pulmonary fibrosis
      Conditions with pulmonary fibrosis
      • RA-ILD
      • Scleroderma with ILD
      • Sarcoidosis
      • Sjögren’s syndrome
      • Hypersensitivity pneumonitis (HP)
      • Idiopathic pulmonary fibrosis (IPF)
      • Comorbidities, or co-existing conditions
    • Symptoms of pulmonary fibrosis
    • Diagnosing pulmonary fibrosis
      Diagnosing pulmonary fibrosis
      • Explaining pulmonary fibrosis to others
      • Recently diagnosed
  • Living with pulmonary fibrosis
    • Taking care of yourself
      Taking care of yourself
      • Vaccinations
      • Nutrition
      • Exercise
      • Sleep
      • Relaxation
      • Quitting smoking
      • COVID-19 and pulmonary fibrosis FAQs
    • Managing your pulmonary fibrosis
      Managing your pulmonary fibrosis
      • Monitoring symptoms in pulmonary fibrosis
      • Managing your cough
      • Breathing exercises
      • Making the most of your appointment
      • Questions to ask your doctor
      • Your guide to telemedicine appointments
    • Practical advice
      Practical advice
      • Setting personal goals
      • Expressing yourself
      • Traveling
      • Planning for the future
      • Power of attorney
      • Journeys through pulmonary fibrosis podcast
    • Treatments
      Treatments
      • Oxygen therapy
      • Pulmonary rehabilitation
      • Lung transplantation
    • Wellbeing resources
      Wellbeing resources
      • Community and support groups
      • Yoga
      • Music therapy
      • Mindfulness
    • Patient stories
      Patient stories
      • Patient talk series
      • Pulmonary fibrosis postcards
    • Mental wellbeing
      Mental wellbeing
      • Coping with a serious lung condition
      • Depression
  • Carer support
    • Caring for yourself
      Caring for yourself
      • Caregiver support
      • Balancing your life as a carer
      • Focusing on you
      • Your wellbeing
      • Emotional wellbeing
      • Emotional support
      • Carer support groups
      • Diet and exercise
    • Caring for someone
      Caring for someone
      • Explaining pulmonary fibrosis to others
      • Monitoring symptoms in pulmonary fibrosis
      • Lifestyle changes
      • Planning for a bad day
      • Advice on oxygen therapy
      • Looking to the future
      • Supportive care
      • Power of attorney
    • End-of-life care
      End-of-life care
      • Coping with loss
  • FAQs
  • Glossary
Couple holding hands

Coping with loss

There is no right or wrong way to grieve, and everyone heals at their own pace

Coping with loss
Hand writing with a pink pen

Expressing yourself

Your emotions are part of you. It’s important they are taken care of. If you find expressing your emotions difficult, try a more creative approach

Expressing yourself
Elderly lady using oxygen tubes whilst walking around

Managing your pulmonary fibrosis

There are steps that can be taken to help manage some of your symptoms of pulmonary fibrosis to help you live life to the fullest

Managing your pulmonary fibrosis
Doctor using iPad

Conditions with pulmonary fibrosis

Pulmonary fibrosis can take many years to be detected and multiple tests can be required to rule out other conditions

Conditions with pulmonary fibrosis
Couple walking by lake

Your wellbeing

Carers have a demanding role, but support and resources are available to help you

Your wellbeing
Older male at home

Wellbeing resources

Resources to help manage your physical and mental health when living with pulmonary fibrosis

Wellbeing resources
Older couple outside, smiling together

Mental wellbeing

Looking after your mental wellbeing is just as important as looking after your physical wellbeing

Mental wellbeing
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