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Life with Pulmonary Fibrosis
  • Understanding pulmonary fibrosis
    • What is pulmonary fibrosis?
    • Conditions with pulmonary fibrosis
      Conditions with pulmonary fibrosis
      • RA-ILD
      • Scleroderma with ILD
      • Sarcoidosis
      • Sjögren’s syndrome
      • Hypersensitivity pneumonitis (HP)
      • Idiopathic pulmonary fibrosis (IPF)
      • Comorbidities, or co-existing conditions
    • Symptoms of pulmonary fibrosis
    • Diagnosing pulmonary fibrosis
      Diagnosing pulmonary fibrosis
      • Explaining pulmonary fibrosis to others
      • Recently diagnosed
  • Living with pulmonary fibrosis
    • Taking care of yourself
      Taking care of yourself
      • Vaccinations
      • Nutrition
      • Exercise
      • Sleep
      • Relaxation
      • Quitting smoking
      • COVID-19 and pulmonary fibrosis FAQs
    • Managing your pulmonary fibrosis
      Managing your pulmonary fibrosis
      • Monitoring symptoms in pulmonary fibrosis
      • Managing your cough
      • Breathing exercises
      • Making the most of your appointment
      • Questions to ask your doctor
      • Your guide to telemedicine appointments
    • Practical advice
      Practical advice
      • Setting personal goals
      • Expressing yourself
      • Traveling
      • Planning for the future
      • Power of attorney
      • Journeys through pulmonary fibrosis podcast
    • Treatments
      Treatments
      • Oxygen therapy
      • Pulmonary rehabilitation
      • Lung transplantation
    • Wellbeing resources
      Wellbeing resources
      • Community and support groups
      • Yoga
      • Music therapy
      • Mindfulness
    • Patient stories
      Patient stories
      • Patient talk series
      • Pulmonary fibrosis postcards
    • Mental wellbeing
      Mental wellbeing
      • Coping with a serious lung condition
      • Depression
  • Carer support
    • Caring for yourself
      Caring for yourself
      • Caregiver support
      • Balancing your life as a carer
      • Focusing on you
      • Your wellbeing
      • Emotional wellbeing
      • Emotional support
      • Carer support groups
      • Diet and exercise
    • Caring for someone
      Caring for someone
      • Explaining pulmonary fibrosis to others
      • Monitoring symptoms in pulmonary fibrosis
      • Lifestyle changes
      • Planning for a bad day
      • Advice on oxygen therapy
      • Looking to the future
      • Supportive care
      • Power of attorney
    • End-of-life care
      End-of-life care
      • Coping with loss
  • FAQs
  • Glossary
Couple holding hands

Coping with loss

There is no right or wrong way to grieve, and everyone heals at their own pace

Coping with loss
Man smiling at woman

Supportive care

Supportive (palliative) care offers you and your loved one living with pulmonary fibrosis, emotional, physical and spiritual support

Supportive care
Two ladies walking in the garden

Looking to the future

It can be hard to know what to do when your loved one receives their diagnosis but it's important to have a clear plan in place for the future to give you both some peace of mind

Looking to the future

Advice on oxygen therapy

Your loved one living with pulmonary fibrosis may have been given oxygen therapy to help them breathe more easily

Advice on oxygen therapy
Planning for a bad day

Planning for a bad day

Knowing that you're prepared for the tougher days can give you some peace of mind and help your overall sense of wellbeing

Planning for a bad day
Woman smiling with cup in hand

Monitoring symptoms in pulmonary fibrosis

Remind your loved one to monitor any changes in symptoms of pulmonary fibrosis as these can indicate to their doctor how well their condition is being managed

Monitoring symptoms in pulmonary fibrosis
Woman headshot

Explaining pulmonary fibrosis to family and friends

One of the most important steps to take, once you're ready, is to speak to those close to you about your loved one living with pulmonary fibrosis

Explaining pulmonary fibrosis to family and friends
Middle aged man reading with glasses

Balancing your life as a carer

It's important to balance your life as a carer to cope with the mental and physical challenges of looking after a loved one with pulmonary fibrosis

Balancing your life as a carer
Two women in the kitchen area

Practical advice

You may need to make some adjustments, but you'll still be able to set and achieve goals, travel and participate in fulfilling activities

Practical advice
Older couple sharing a joke

Carer support groups

Carer support groups allow carers to share their feelings and help them stay strong and committed

Carer support groups
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