Caring for someone with pulmonary fibrosis is challenging and can be both mentally and physically exhausting. However, it can also be highly rewarding.

Key facts

  • Caregivers should always remember their own needs, as well as those of their loved ones
  • Pay attention to your own health and look out for signs you are becoming unwell
  • Giving the best care possible means also looking after your own health

Many caregivers get tired and overwhelmed when looking after their loved ones in addition to their day-to-day life. It is very common for carers to put aside their own needs while they are busy caring for someone with pulmonary fibrosis.

Family members and friends who provide care for people with pulmonary fibrosis can sometimes be at a greater risk of depression and other chronic illnesses such as high cholesterol, high blood pressure and excessive body weight.

Providing good care for people with pulmonary fibrosis means taking care of your own mental and physical well-being first. Looking after your own health and well-being will help you give the best support to the person you are caring for.

“Always take time to do things for you. Then you can carry on caring.”
– Carer of someone with pulmonary fibrosis

Caregivers may also experience health difficulties of their own, which could put extra burden on the caregiver and affect their ability to care for their loved one. Pay close attention to your own health in case you start to notice any of the following:

  • Difficulty getting a full night’s sleep
  • Poor eating habits
  • Difficulty exercising
  • Failure to get the rest you need when ill
  • Delaying, missing or not making your own medical appointments

Quick Tip

Caregivers have a demanding role, but support and resources are available to help you.

“Never cope alone as a caregiver. There is always someone there to listen and understand how you feel.”
– Caregiver of someone with pulmonary fibrosis